AMTA Government Relations Update 4-19-2025

DESCRIPTION OF ISSUE:

On April 16, 2025, U.S. Department of Health and Human Services (HHS) Secretary Kennedy held a press conference on new Autism findings from the Centers for Disease Control (CDC). The presentation included data on the increase in autism prevalence in the nation and the Secretary’s belief that environmental toxins are the cause of the disorder.  He stated HHS will announce new studies within 2-3 weeks, with the agency expecting results by September.  

Secretary Kennedy also offered comments describing individuals with autism in a manner that was extremely offensive and disturbing.  He stated, "These are kids who will never pay taxes. They'll never hold a job. They'll never play baseball. They'll never write a poem. They'll never go out on a date. Many of them will never use a toilet unassisted." His remarks, which represent HHS, demonstrate a severe lack of awareness of autism spectrum disorders, existing research, successful program evidence, and an alarming lack of respect for autistic individuals.

WHAT ADVOCACY HAS OCCURRED:

National organizations that directly support autistic children and adults moved swiftly to create a united statement declaring that we:

...stand united in our call for science-based decision-making and increased investment in the research, programs and services the Autism community needs to live fully.

Numerous organizations were invited and signed on to this statement, including AMTA.  We are in full support of the statement and its principles quoted below:

• Vaccines Do Not Cause Autism. Decades of scientific research confirm there is no causal link. Public health messaging must be grounded in science and protect all communities.
• Autistic Individuals Deserve Respect and Support. Public dialogue and policy must reflect the inherent value, rights, and diverse needs of Autistic people.
• Evidence-Based Policy Is Essential. We call on policymakers to work in collaboration with Autistic individuals, families, researchers, clinicians, and disability organizations to ensure policy is grounded in science and responsive to community needs.

The full statement is available here as a PDF or directly on the website.

HOW YOU CAN HELP:

First, take this opportunity to educate yourself and your communities about autism spectrum disorders; how autistic individuals are a vibrant part of our communities and lead productive and full lives.  Advocate for and with your autistic clients and friends.

Secondly, speak to the wide variety of effective tools and interventions that help autistic individuals. Highlight science-based facts, federal and state programs (Medicaid Waivers, Individuals with Disabilities Education Act-IDEA, the Administration on Community Living), and professional services, like music therapy, that provide opportunities for life engagement. Ask your federal legislators to maintain support for research, education, treatment options, and community programs that recognize the rights and diverse needs of autistic individuals.

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